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Support for people with interstitial lung disease
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nursernbsn08



Joined: 07 Jul 2010
Posts: 734

Post Posted: Wed Feb 16, 2011 10:38 pm Reply with quote    Back to top    

How do they conclude what percentage of lung you are functioning at??? I read ppl saying they are functiong at 30 or 60% of their lungs. Sounds like a silly question and I asked one of the Respiratory therapists at Pulmonary Rehab and she couldn't tell me??? Strange huh.
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captex



Joined: 27 Dec 2009
Posts: 319

Post Posted: Thu Feb 17, 2011 5:05 pm Reply with quote    Back to top    

I just noticed your question. I believe that they are referring to the DLCO, a component of the PFT test. It gives you a general idea about what shape your lungs are in. It is not a definitive test, just another indicator that needs to be considered with the other components of the test.

Take Care,

captex

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Melissa S



Joined: 02 Sep 2010
Posts: 228
Location: Waterloo, Ontario, Canada

Post Posted: Thu Feb 24, 2011 7:53 pm Reply with quote    Back to top    

I think people are referring to different values. Possibly the DLCO, or the TLC (total lung capacity), or the FVC (forced vital capacity). Not sure why the RT couldn't venture a guess about what people are referring to, but maybe she was confused about the question? Maybe she doesn't do PFT's at all, but you would think she'd at least understand what they are.

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webarker



Joined: 27 Sep 2010
Posts: 49

Post Posted: Thu Feb 24, 2011 8:16 pm Reply with quote    Back to top    

nursernbsn08 wrote:
How do they conclude what percentage of lung you are functioning at??? I read ppl saying they are functiong at 30 or 60% of their lungs. Sounds like a silly question and I asked one of the Respiratory therapists at Pulmonary Rehab and she couldn't tell me??? Strange huh.
I think it can mean different things. The numbers are mostly given as percent of expected normal for someone of the gender, age and size. They can refer to the percent of total volume, diffusion, or air flow. Different ILDs will effect each of these measures in different ways. COPD limits air flow, IPF effects diffusion more quickly than air flow and total volume. After having one of the lungs removed because of cancer the total lung volume would be at most 50%, but if the remaining lung worked correctly I would think that would be better than 100% volume with only 50% diffusion.
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jmwilber



Joined: 09 Jan 2011
Posts: 86
Location: Virginia

Post Posted: Fri Feb 25, 2011 7:41 am Reply with quote    Back to top    

I'm pretty sure all the ILD's affect diffusion rate more than volume and forced air. Diffusion rate is your ability to move oxygen throughout the body. The weird think is that I feel perfectly normal and just little SOB while climbing stairs (except now recovering from VATS) and my DLCO is in the 60's. You'd think I'd have more symptoms - not that I'm complaining.

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ILD 2010, MGUS, Reynaud, UIP caused by who knows what by VATS 2/11, UIP or NSIP caused by scleroderma - 3rd set of bloodwork was the charm (no skin involvement as of yet)
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strayze
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Joined: 22 Dec 2002
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Location: Maryland

Post Posted: Fri Feb 25, 2011 8:51 am Reply with quote    Back to top    

the measurement of diffusion tells us the ability of the oxygen breathed in, to make its way in our scarred lungs to the arterial blood. All of this occurs in the lungs. If the lungs are scarred, there is difficulty in oxegenated blood to to be forms, as the oxygen must travel (diffuse) to the blood supply in the lung to oxygenate it, forminh oxyhemoglobin. The blood in the lungs, oxygenated or not, then completes its travel cycle by going to the periphery of our body. In ipf the body of the lung is affected. The no widely used medicines that affect this. This is in contrast to emphysema or bronchitis, where he bronchial tubes are affected by remaining too tightly closed. That is why people with copd can get some relief from bronchodilators sold OTC or bt script. The much money I put into prescribed bronchodilators early on, was like flushing money down the toilet.

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strayze
IPF-UIP by VATS at Hopkins, 8/00
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Severe symptoms 12/99
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nursernbsn08



Joined: 07 Jul 2010
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Post Posted: Fri Feb 25, 2011 7:29 pm Reply with quote    Back to top    

I know what you mean Strayze about the Bronchodilators. I do use Xopenex. It does give some relief. I don't know why because I only show Restrictive Airway Disease or so they say.
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strayze
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Joined: 22 Dec 2002
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Post Posted: Sat Feb 26, 2011 7:25 am Reply with quote    Back to top    

Lung function testing determines whether the broncodilator sprays can improve one's breathing: the FEV1 test in which one is tested first how much air one exhale in 1 min. Then a bronchodilator spray is administered, and the amount of air exhaled in 1 min is remeasured. If a greater amount of air is exhaled, then the use of broncodilators is appropiate; If the same, the use of a bronchodilatot spray is clearly inappropiate..

Some nonspecialist doctors prescribe bronchodilators willynilly. This is not only expjensive for the patient, but can be dangerous if patient has certain heart conditions or high blood pressure, unless corrected.

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strayze
IPF-UIP by VATS at Hopkins, 8/00
NSIP by VATS review+ new tets, Nat. Jewish 3/04
Severe symptoms 12/99
Dyspnea since '73
ILD by CXRs since '85
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Mickpictures



Joined: 26 Oct 2010
Posts: 57
Location: Somerset England

Post Posted: Sat Feb 26, 2011 12:41 pm Reply with quote    Back to top    

It was explained to me you have these different breathing tests, the DLCO or TLC are the ones that concernes the doctors, mine had reduced to 24% lung capacity on my last visit which concerned them the most although my other breathing tests FVC and so on were also down.
The predicted % is only a guide as far as i know as no one knows what you started out with before you have the desease so they go by an average of age, size, sex etc.
I,m not sure I am any the wiser but that is what they told me,
Over the last 6 years I have seen my capacity at 80%, then 60% and so on but no rules to it, I have stayed stable for a couple years then it reduces quite bad then stops.
I was coping with this disease, managing slowly to be independent until I got down to about 35% before I needed oxygen 24/7 but still managed, at 24% I can't walk no more then 10 feet without oxygen and only 20 feet with before I am
exhausted.
Again I think it's an indervidual thing someone else might do better on 24% and maybe some do worse,
I hope this is helpful
Mick

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nursernbsn08



Joined: 07 Jul 2010
Posts: 734

Post Posted: Sun Feb 27, 2011 6:09 pm Reply with quote    Back to top    

Thanks everyone......Smile
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