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LLOLs
Joined: 17 Jan 2008
Posts: 174
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Karen, I'm thrilled to hear about your getting listed! Hoping you will get a call really soon! did they tell you where at on the list you are? |
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relivkaren
Joined: 03 Jul 2007
Posts: 107
Location: Columbus, Ohio
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LLOLS:
I am sorry that I am just responding to your question. I have trouble keeping up with my computer. I have been buried in getting our taxes ready to go to the accountant - Yuck!!
Anyways... no I don't know where I am on the list. I had so many questions to ask that I forgot to ask that one. I am doing a sleep study to see if I need a bipap. The Dr. did say that if I do need bipap that it would push me up the list a little higher.
Thanks for asking! God Bless!
Karen |
_________________
Dx: BOOP 5/2006 left with Bronchiolitis Obliterans. List for dbl lung tx at Cleveland Clinic 2/7/08 |
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Vinny
Joined: 17 Apr 2007
Posts: 55
Location: Pennsylvania
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Hi all, I just got a call from Cleveland Clinic and they said my bronch done on Tuesday the 19th showed the rejection is gone and they are pleased with my progress. Great news, as I was concerned.. I've been feeling great this last week or so, and started pulmo rehab today, so I should be feeling even better.
What a relief it is not having to wear that oxygen especially when exercising .
vinny |
_________________
IPF diagnosis ..... Vats lung biopsy Jan 2004
Cleveland Clinic, listed for dbl lung tx on 10/11/2007. Received dbl tx 12/15/2007 |
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marie
Joined: 13 Jan 2006
Posts: 480
Location: CT
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Vinny,
That's great! I know you will steadily continue to improve and feel better. I'm sure you're looking forward to the summer and not having to use O2! |
_________________
Dad has IPF/UIP/COPD
Diagnosed May 2004
I will leave no stone unturned
The last stone was turned on August 18, 2006 |
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Cheryle
Joined: 31 Mar 2007
Posts: 337
Location: Lawrenceville, Georgia
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Vinny,
So glad to hear you are doing so well! |
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Cheryle
DX ILD Nov 2006 Antisynthetase Syndrome (anti Jo -1antibodies), Jul 2007 Undifferentiated Connective Tissue Disease (UCTD), DX 3/08 CREST/ Limited Scleroderma |
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relivkaren
Joined: 03 Jul 2007
Posts: 107
Location: Columbus, Ohio
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Vinny:
That is awesome news!! I am thrilled that you are doing so well. I can't wait until I can exercise without O2!!
Keep up the great work!!
God Bless!
Karen |
_________________
Dx: BOOP 5/2006 left with Bronchiolitis Obliterans. List for dbl lung tx at Cleveland Clinic 2/7/08 |
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pat
Joined: 31 Dec 2002
Posts: 1504
Location: Maryland
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Vinny,
Just wait until you are out as long as me and you will know how wonderful transplant can be.
Pat
7 years and going strong!!! |
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IPF/UIP:double lung transplant December 2000 University of Maryland Medical Center.
Be an organ and tissue donor!!! |
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br6633
Joined: 23 Dec 2002
Posts: 1364
Location: A Proud Canadian, Living In Canada
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I'm glad you received the transplant Vinny. Donors and their families are truly wonderful people.
Pat, 7 years and still going strong!!! Good for you.  |
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~~Kathy~~
~07/98 SOB/COUGH~06/00 UIP/IPF DX/VATS~
~12/04 O2~12/06 CT/UP TO MY APICES IN IPF~
~07/08 PALLIATIVE CARE~
“The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails.”
William Arthur Ward |
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Mrs. W
Joined: 30 Jun 2005
Posts: 1959
Location: Wisconsin
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Hi Vinny
So glad the rejection is gone. We are praying for you always.
Hugs,
Pam and John |
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Firefighter husband Sarcoidosis/PF. UW Madison right lung tx Nov. 8, 2005. Chronic Rejection 1/10 My Caregiver verse:"..Be strong and courageous. Do not tremble or be afraid, for the Lord your God is with you wherever you go." Joshua 1:9 |
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