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Support for people with interstitial lung disease
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KatG



Joined: 06 May 2006
Posts: 989
Location: Booneville Arkansas

Post Posted: Sun Jul 25, 2010 1:01 pm Reply with quote    Back to top    

I do not know any details yet but I know that MAtt and Billy are hugging and breathing as I type...
I feel like I have lost Matt all over again...maybe worse this time if that is possible...
He loved everyone here and we called this our "family"...It is and will remain to be mine...
I will give more details as I get them...Love ya'll...Pray for Verba---KatG/KatC

_________________
MAtt Griffin-Diagnosed IPF 05-02-06
Dying was flown to OKC 11-15-06
Single lung TX 12-03-06
Fought long and hard trying to live...
Freed from this world 1-21-08

New love and happily married-05-23-08
Still the memories will always remain...
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Sunny



Joined: 26 Aug 2009
Posts: 83
Location: Washington State

Post Posted: Sun Jul 25, 2010 1:27 pm Reply with quote    Back to top    

Kat please tell Verba that our hearts are with her. I'm shaken and filled with heartache that things turned out this way for such a wonderful man, such a shining light. Billy is with his God, his trials are done. Oh I wish that were not so. My prayers are now with his family and Verba as they struggle to accept and heal.

_________________
~Sunny~
Husband dx NSIP June 2009
2nd dx from UW 2010 UIP
Everything is vague to a degree you do not realize
till you have tried to make it precise.
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Cheryle



Joined: 31 Mar 2007
Posts: 337
Location: Lawrenceville, Georgia

Post Posted: Sun Jul 25, 2010 1:34 pm Reply with quote    Back to top    

I kept hoping for a miracle. My heart aches for all his family and friends.Perhaps the miracle is that Billy is no longer struggling to breathe. Oh, how we all wish his story could have had a different ending.
Rest In Peace, BillyK, everyones dear friend.

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Cheryle
DX ILD Nov 2006 Antisynthetase Syndrome (anti Jo -1antibodies), Jul 2007 Undifferentiated Connective Tissue Disease (UCTD), DX 3/08 CREST/ Limited Scleroderma
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Mary J.



Joined: 12 Jan 2010
Posts: 558
Location: Michigan

Post Posted: Sun Jul 25, 2010 3:46 pm Reply with quote    Back to top    

Billyk, you will be missed!

_________________
Mary JLM-UIP/IPF-Jan.2008 / Fibromyalgia
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sueli



Joined: 10 Jan 2006
Posts: 83
Location: Wisconsin

Post Posted: Sun Jul 25, 2010 5:49 pm Reply with quote    Back to top    

Billy u will be truly missed. But now u are breathing easier. The tears just keep coming.
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Mrs. W



Joined: 30 Jun 2005
Posts: 1959
Location: Wisconsin

Post Posted: Sun Jul 25, 2010 10:26 pm Reply with quote    Back to top    

Billy always encouraged my walk with the Lord...so thankful for his emails and notes to John and I. Verba, oh my, how he loved you and his Lord. And Kat...you were his sister, maybe not by blood but of the heart. I know he considered you both a gift from God.
My friend wrote this after her sister died, it was on her FB. I want to share it with all because it is written so beautifully...

Billy
This isn't death---it's glory! It's not dark--it's light! It isn't stumbling, groping, or faith--it's sight!! This isn't grief--it's having my last tear wiped away. It's sunrise--it's the morning of my eternal day!!

So very much love,
Pam[/b]

_________________
Firefighter husband Sarcoidosis/PF. UW Madison right lung tx Nov. 8, 2005. Chronic Rejection 1/10 My Caregiver verse:"..Be strong and courageous. Do not tremble or be afraid, for the Lord your God is with you wherever you go." Joshua 1:9
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robinlscott



Joined: 16 Nov 2009
Posts: 49
Location: Snohomish Washington

Post Posted: Mon Jul 26, 2010 12:19 am Reply with quote    Back to top    

RIP Billy. Here is a YouTube link to Brudda Iz's song, Somewhere Over the Rainbow/What a Wonderful . It seems appropriate for Billy from what little time I knew him here on Huff n Puff. I hope this works.

http://www.youtube.com/watch?v=V1bFr2SWP1I

_________________
Diagnosed BOOP/COP, with PF, 6/2009
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angelina



Joined: 20 Oct 2004
Posts: 707
Location: Atlanta georgia

Post Posted: Fri Jul 30, 2010 7:26 pm Reply with quote    Back to top    

Bless you Billy, friend to all

_________________
Mother has IPF. Single lung transplant
12/22/04!!! Everyday after has been a gift!
Went to the lord Nov. 30, 2007
God Bless the donor & family & my Mom
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