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Support for people with interstitial lung disease
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pat



Joined: 31 Dec 2002
Posts: 1504
Location: Maryland

Post Posted: Mon Jan 11, 2010 12:08 pm Reply with quote    Back to top    

we all owe such a debt to Bill for saving Huff-n-puff. I am so sorry that some of the newbies did not get a chance to know such a remarkable person. I miss him very much. He was the Father of our site moderator Greg Allen.
Pat

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IPF/UIP:double lung transplant December 2000 University of Maryland Medical Center.
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pat



Joined: 31 Dec 2002
Posts: 1504
Location: Maryland

Post Posted: Sat Jan 16, 2010 12:23 pm Reply with quote    Back to top    

I am surprised that no one has responded to this post. Bill is the reason that we have huff-n-puff. Please go back and read some of his old posts he was an amazing person.

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IPF/UIP:double lung transplant December 2000 University of Maryland Medical Center.
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Beach Deb



Joined: 25 Aug 2009
Posts: 201
Location: MA summer - FL winter

Post Posted: Sat Jan 16, 2010 3:05 pm Reply with quote    Back to top    

Pat, Sorry didn't even see a post of his death. Will definitly read some old posts to get to know who he was and what disease he had and how long he endured. It is always sad to read these postings but I am glad that someone posts them so we can know. Thankyou for posting.
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pat



Joined: 31 Dec 2002
Posts: 1504
Location: Maryland

Post Posted: Sat Jan 16, 2010 3:55 pm Reply with quote    Back to top    

Bill had IPF and had a single lung transplant he has been dead a number of years now but he was there for me when I needed him and I was there for him. His kidneys failed and he had to go on dialysis. He was a wonderful Christian man and his son Greg the moderator for this site keeps it going in Bill's memory. He went by Bill on this site.

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IPF/UIP:double lung transplant December 2000 University of Maryland Medical Center.
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strayze
Moderator


Joined: 22 Dec 2002
Posts: 5729
Location: Maryland

Post Posted: Sat Jan 16, 2010 4:35 pm Reply with quote    Back to top    

Bill Allen was a wonder man. I shall always remember him with much respect.

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strayze
IPF-UIP by VATS at Hopkins, 8/00
NSIP by VATS review+ new tets, Nat. Jewish 3/04
Severe symptoms 12/99
Dyspnea since '73
ILD by CXRs since '85
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Mrs. W



Joined: 30 Jun 2005
Posts: 1959
Location: Wisconsin

Post Posted: Sat Jan 16, 2010 9:24 pm Reply with quote    Back to top    

I've read some of his scriptural writings and just knowing his son Greg, who is also a wonderful man, he must have been very dear.
Pam and John <><

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Firefighter husband Sarcoidosis/PF. UW Madison right lung tx Nov. 8, 2005. Chronic Rejection 1/10 My Caregiver verse:"..Be strong and courageous. Do not tremble or be afraid, for the Lord your God is with you wherever you go." Joshua 1:9
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T



Joined: 26 Dec 2002
Posts: 1014
Location: southwestern Indiana

Post Posted: Mon Jan 18, 2010 2:20 pm Reply with quote    Back to top    

Bill was a very special person who helped MANY people, but I will treasure his influence on my life. I would have responded much sooner but it's been a crazy month. Thank you, Pat. For most of you my advice is to read his journal.
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Greg
Site Admin


Joined: 21 Dec 2002
Posts: 214
Location: WA

Post Posted: Sun Jan 31, 2010 4:54 pm Reply with quote    Back to top    

Thanks everyone for the kind words about my dad. He was indeed an amazing person and I miss him very much.

Besides Huff-n-Puff, here are two websites that he worked on during his illness:

http://www.radmedicine.com/lung/
http://www.radmedicine.com/poems/

He was also a fan of the Jewish novelist Chaim Potok and put together what is still the definitive web resource for Potok's work:

http://potok.lasierra.edu/

Thanks again for remembering my dad. He would be very happy to see Huff-n-Puff continue to thrive.

Greg
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mouser



Joined: 02 Oct 2005
Posts: 248
Location: Arizona

Post Posted: Sun Jan 31, 2010 6:48 pm Reply with quote    Back to top    

Dear Greg,

Setting up and continuing this site has been such a wonderful gift to all of that are suffering from the pain that the disease brings.
Thanks for the additional websites. I thought I had read everything by your Dad but I had not. What a treat and a source of inspiration.
It must have been a real blessing to have him for a father. He certainly used his unfortunate condition to make the world a better place.
Regards.
Mouser
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callie



Joined: 05 Feb 2005
Posts: 1096
Location: MOORES HILL INDIANA

Post Posted: Tue Feb 02, 2010 6:01 am Reply with quote    Back to top    

What a wonderful man and father..I wish I could have known him..Thank you for keeping this sight going...You are in my thoughts and prayers...Callie

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I have made it almost 7 years in Sept. It gets more difficult each day...but taking one day at a time.....
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Beach Deb



Joined: 25 Aug 2009
Posts: 201
Location: MA summer - FL winter

Post Posted: Tue Feb 02, 2010 10:01 am Reply with quote    Back to top    

What subject is his journal under? There are so many places to look. Thanks. Deb

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Diagnosed IPF 2/09 Changed 6/09 NSIP?
Who knows really, and actually what difference does it make? Live or die that is the question.
It is how you do either that is the answer.
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pat



Joined: 31 Dec 2002
Posts: 1504
Location: Maryland

Post Posted: Fri Feb 05, 2010 11:57 am Reply with quote    Back to top    

under the one with poems in the link
enjoy a very special blessing

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IPF/UIP:double lung transplant December 2000 University of Maryland Medical Center.
Be an organ and tissue donor!!!
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sarahp



Joined: 20 Nov 2006
Posts: 45
Location: Orlando, FL

Post Posted: Fri Feb 05, 2010 4:51 pm Reply with quote    Back to top    

I just got back on HnP after a couple of weeks and saw this post. I remember Bill so fondly, and especially for the time and effort he took to send a personal, lengthy email to David regarding the transplant procedure. I remember that in that email he said, "I like the way you use the term "we" " (he was talking about the way I had described the journey we had been on through diagnosis, etc.). What a wonderful, giving man he was!...And this site lives on to help others. May God bless his family...

Sarah

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Husband David dx IPF/UIP Feb.'02
Transplant Vanderbilt Jan. '04
Won his battle with familial PF Feb. 18, 2004 when he was welcomed into the loving arms of his Heavenly Father.
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saltimore



Joined: 06 Oct 2008
Posts: 206
Location: Middle of Texas

Post Posted: Tue Feb 23, 2010 10:28 pm Reply with quote    Back to top    

I am so thankful for this man who started Huff-n-Puff because when I was first diagnosed with Pulm/ Fibrosis I was in a daze, scared, felt alone, but searching for everything I could find on this disease and could find little. The Pulm.doctor I had at that time spoke in a foreign language with words like Idiopathic Pulmonary Fibrosis, etc, etc. It was a whole new language I had to learn, words that I didn't know the meaning of. The nurse in the hospital gave me a print out from WebMD on the subject which was good and I still have the article. I still don't know how I happened to find about Huff-n-Puff, but think someone on the Coalition of Pulm. Fibrosis suggested I go there. I haven't been back to another one since.
Sue

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